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The Book

November 20, 2021 By Mary Kay Olson Leave a Comment

Have you ever had a thought that came to you, or a feeling that you were supposed to do something?

That happened to me on the plane ride home from Columbus, Ohio after Ella’s 9th surgery. The thought that came to me was, “You need to write a book.” Now, in the past when I felt God wanted me to do something completely out of my comfort zone, I would do one of several things. I would either make an excuse for why I couldn’t do it, or argue and say, “Honey, no.”

But this time, for some reason, I jumped in immediately. I got a pen out of my purse, and leaned over to Ella and told her what was happening. I asked her what she would tell other kids that were sick. She thought for a while and then started listing some things. I wrote everything she said on an airplane napkin.

When we got home, I took that napkin and started writing. But, the more I wrote, the more the words kept coming for Eli’s journey through all of Ella’s health struggles. I remembered one day after church, he said, “Mom, why do people say they are praying for Ella, but no one says they’re praying for me?” Or, “Mom, why does Ella get cards and gifts after a surgery and I don’t get any?” He didn’t feel seen, and that broke my heart.

I did some research, and found that there are a ton of books for sick kids, but hardly any for the siblings of sick kids. I knew without a doubt, that that’s what the book was supposed to be about.

I sat Eli down and told him what I was thinking and he was on board. I told him I wouldn’t write anything that he was uncomfortable with and asked him what he would say to other kids that have a sick sister or brother. Most of what he said was based on emotions and what you do about it.

I started writing when he was at school. After school he would read it and tell me what he liked or didn’t like. I remember one day, I thought I had a great idea and completely rewrote the book. I thought he would love it. I’m sure you can guess what happened. He read the first page and said he didn’t like it. Unfortunately, I had already deleted the first draft because I was so sure he would love it. Lesson learned. Save all your work.

Now, after many revisions, and many rejections, it’s being published. I am so excited that Eli’s voice will be heard. Finally.

If you ever get that nudge to do something out of your comfort zone, I encourage you to be open to it. Go for it. What do you have to lose?

Oh, and save your work.

Invisible

October 27, 2021 By Mary Kay Olson Leave a Comment

 

There is no greater pain, than when your child is hurting. Whether that is physical pain or emotional pain.  Watching them hurt, literally breaks your heart.  As the parent, you try to solve it.  You try and find the medicine, find the doctor, find the counselor, do the research, and advocate, advocate, advocate.

Right now, Ella is struggling.  This last month she has had a cold virus, Covid, and now another virus.  Her body is weak, her spirit is weary, and after three weeks out of school, the pressure is mounting.  And, all I want to do is solve it.  But, some things you just can’t solve.

The only thing I can do is take care of her needs, love on her and pray.  To say this child has gone through a lot in her short life, is an understatement.  Nine surgeries, countless doctor appointments, so much medicine and one sickness after the other.  It has taken a toll.

One of the issues we face as a family is that her illness is invisible.  You can’t see it.  And when you can’t see an illness, you are faced with judgement.  You are faced with a, “Well, it’s not that big of a deal” attitude.  Comments like, “We don’t see it.”  “She acts fine.”  “She doesn’t look sick.”  When these comments are made to her, or to us, it is damaging.  We know the moment a comment like that is made, they are not our people.  And we move on.  My protective instinct with Ella is fierce.  Mama Bear comes out when I see her being put down or not believed.

My question to you is this… do you have a child who is sick or hurting?  Is that sickness invisible?  If it is, please know that you are not alone.  I see you.  I hear you.  And, I’m so sorry for your pain.  Find people who love and support you.  Reach out to me if you need support.  I am here for you.  You deserve the best.  Let’s support each other as we take care of our children and ourselves.

No More Fear

March 1, 2021 By Mary Kay Olson 4 Comments

Fear. Fear has held me back most of my life. Fear of what people think. Fear of being good enough. Fear of failing. Five years ago, I took a leave of absence from my job to begin speaking and sharing my story. I made a website, wrote a book, and began speaking. The one thing I haven’t done is promote and market myself. Marketing is hard. Especially when you’re marketing yourself. But, I have decided I need to put fear in the back seat and just do it. But, I need your help. I need your help getting my name out there. Getting my website out there. God called me to start speaking 20 years ago and I need to get going. If your church, youth group, women’s group needs a speaker, either in person or virtually, I would love to share how God saved my life multiple times.

I also want to have a Praise Up event when Covid calms down and give people a platform to share their stories. There are so many of you who have a story that would give people hope. Have you ever felt that you were supposed to share your story? If so, send me a DM and let’s make it happen.

In addition, I want to pursue getting the book Eli and I wrote, “My Sister is Sick, What about Me?” published. This book gives a voice to siblings of sick kids. There are so many books out there for sick kids, but hardly any for their siblings. We want them to know that we see them and know that having a sick sibling is hard on them too.

I have an independent publisher that wants to partner with me, but right now, money is extremely tight. If you would like to help me with this endeavor you can donate on my website, www.praiseup.org.

Again, I will travel anywhere to share about God and how he changed my life. Or, I can do a virtual event. Thank you so much as I take a step out of the boat and start marketing myself. Stay tuned for more information on my first “Praise Up” event.

I needed to read this today

April 28, 2020 By Mary Kay Olson Leave a Comment

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